Today is day 15, which means we have about 91 days to go. 15 days, wow, that's half a month!! I'm torn as to how to feel about that. Happy that we've gotten 15 days done already, and sad that he's already 15 days old and all of his days have spent in the hospital. Oh, I don't know.
So the picture above shows the sign they made for his door. They hung it up today. I think it's cute. Only the babies in private rooms get a cool sign like that, we feel very blessed to have it.
Joshua had a not so good night last night with Daddy. He cried nearly the entire time Daddy was with him and poor Daddy felt horrible about it. He's there with him again tonight and I hope and pray they are having a better night. His day today was pretty good. He was awake for a whole 2 hour spread, sometimes just quiet and looking around and sometimes crying. It wasn't so bad.
I love that boy so much, I just can't even imagine our life without him. The kids love him too. Tonight I was supposed to take the kids to soccer but it was cancelled, so we just went out to Target and Kroger and filled up the bare fridge. At Target, I noticed Noah was in a bad mood and I asked him what was wrong and he said he wanted Joshua to come home. So I guess it is affecting them. It stinks that they can't even go and visit him anymore. I'm trying to show them pictures everyday and update them about him. This is just so not fun.
His health update is that he did pretty well today. He had more green output from his nasal tube and his stoma was dilated for the 3rd time. Still nothing coming out of it. His surgeon came by today and he said we're going to be getting more "aggressive" Monday with his treatment. They are going to do a study of the lower portion of the intestine to be sure there's no blockages there and then they may start feeding him just in the lower portion while the top portion still works itself out. I'll be so happy when they feed him. I just know the breastmilk is going to help him heal. I just know it. So today he had another x-ray for them to check some things out and of course he did not enjoy that as they have to hold him down to do it and he does not like being held down!! His nasal tube got clogged and his belly contents got too full and he vomited some of them up. It scared me to death when it happened because his belly contents are just bile which is bright green. He was fine though, we just had to clean him up and change his clothes. Overall he's doing well, and he looks and is very healthy, he just needs to get off the IV feeds and onto real food! Then we'll be heading in the right direction and all will be happier.
Well that's all for now. Nighty night!
2 comments:
He is so sweet! I know this time is rough for you and will continue to be rough for awhile, but he is really great (and worth the wait)!
That is a really cool sign! What a nice addition to a memory box for him when he is older!
Noah and Abby are such special kids and while this has got to be incredibly tough for them too,they know it is what is needed. You are doing a wonderful job of making sure they are taken care of as well and that they know they are loved!
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